Ayelet Galena
Biography of Ayelet Galena
Ayelet Yakira Galena (December 5, 2009 – January 31, 2012) was a young girl from New York City who became widely known for her battle with a rare genetic disorder called dyskeratosis congenita. Her story captured the hearts of many and brought significant attention to the need for bone marrow donors.
Early Life[edit | edit source]
Ayelet Galena was born to parents Seth Galena and Hindy Poupko Galena. She was a vibrant and joyful child, known for her bright smile and cheerful demeanor. Her family was part of the Jewish community in New York City, and they were actively involved in raising awareness about her condition.
Dyskeratosis Congenita[edit | edit source]
Dyskeratosis congenita is a rare genetic disorder that affects multiple parts of the body, including the skin, nails, and bone marrow. It is characterized by a triad of symptoms: abnormal skin pigmentation, nail dystrophy, and leukoplakia. The condition can lead to bone marrow failure, which was the case for Ayelet.
Medical Journey[edit | edit source]
Ayelet's medical journey began when she was diagnosed with dyskeratosis congenita. Her condition required a bone marrow transplant, which prompted her family to launch a campaign to find a suitable donor. The campaign, known as "Ayelet's Amazing Adventure," utilized social media and community outreach to increase awareness and encourage people to join the bone marrow registry.
Community Impact[edit | edit source]
The campaign to find a bone marrow donor for Ayelet had a significant impact on the community. Thousands of people joined the bone marrow registry, inspired by Ayelet's story and the efforts of her family. Although a perfect match was not found in time to save Ayelet, the increased registry participation has helped many others in need of transplants.
Legacy[edit | edit source]
Ayelet Galena passed away on January 31, 2012, at the age of two. Her legacy lives on through the continued efforts of her family and supporters to raise awareness about bone marrow donation and dyskeratosis congenita. The story of Ayelet Galena continues to inspire acts of kindness and generosity, encouraging people to become bone marrow donors and support those in need.
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