EUROCAT

EUROCAT

EUROCAT is a European network of population-based registries for the epidemiological surveillance of congenital anomalies. Established in 1979, EUROCAT aims to provide essential data on congenital anomalies to facilitate research, prevention, and the planning of health services. The network covers over 1.7 million births per year, representing approximately 30% of the European birth population.

History

EUROCAT was founded in response to the need for systematic data collection on congenital anomalies across Europe. The network was initially funded by the European Commission and has grown to include over 40 registries from 23 countries. The registries collect data on congenital anomalies diagnosed up to the age of one year, although some registries collect data up to five years of age.

Objectives

The primary objectives of EUROCAT are:

• To provide essential epidemiological information on congenital anomalies in Europe.
• To facilitate the early warning of new teratogenic exposures.
• To evaluate the effectiveness of primary prevention.
• To assess the impact of prenatal screening.
• To act as an information and resource center for the population, health professionals, and policy makers.

Data Collection and Methodology

EUROCAT registries collect data on congenital anomalies using standardized definitions and coding systems, such as the International Classification of Diseases (ICD). Data is collected from multiple sources, including hospital records, birth and death certificates, and prenatal screening results. The network ensures data quality through regular audits and validation studies.

Research and Publications

EUROCAT data has been used in numerous research studies to investigate the prevalence, risk factors, and outcomes of congenital anomalies. The network publishes annual reports and collaborates with other international organizations, such as the World Health Organization (WHO) and the International Clearinghouse for Birth Defects Surveillance and Research.

Impact and Importance

EUROCAT plays a crucial role in monitoring trends in congenital anomalies and identifying potential public health interventions. The data provided by EUROCAT has been instrumental in understanding the impact of environmental and genetic factors on congenital anomalies and in evaluating the effectiveness of preventive measures, such as folic acid supplementation.

Challenges and Future Directions

Despite its successes, EUROCAT faces challenges such as variations in data collection methods across registries and the need for continuous funding. Future directions for EUROCAT include expanding coverage to more European countries, enhancing data collection methods, and integrating genetic data to better understand the etiology of congenital anomalies.

Also see

• Congenital disorder
• Epidemiology
• Teratogen
• Prenatal diagnosis
• Public health

Resources

Latest articles - EUROCAT

• Most recent articles
• Ongoing trials

Source: Data courtesy of the U.S. National Library of Medicine. Since the data might have changed, please query MeSH on EUROCAT for any updates.

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