Huntington's Disease Association

Charity supporting individuals affected by Huntington's disease

Huntington's Disease Association logo

The Huntington's Disease Association (HDA) is a prominent charity in the United Kingdom dedicated to supporting individuals and families affected by Huntington's disease. The organization provides a range of services, including information, advice, and support, to improve the quality of life for those impacted by this genetic disorder.

History

The Huntington's Disease Association was established in 1971 by a group of families affected by the disease. The founding members recognized the need for a dedicated organization to provide support and raise awareness about Huntington's disease, which at the time was relatively unknown to the public and medical community.

Mission and Objectives

The primary mission of the HDA is to support people affected by Huntington's disease and to improve their quality of life. The organization aims to:

• Provide comprehensive information and advice to individuals and families.
• Raise awareness and understanding of Huntington's disease among the public and healthcare professionals.
• Advocate for better services and support for those affected by the condition.
• Support research into the causes, treatment, and management of Huntington's disease.

Services

The Huntington's Disease Association offers a variety of services to support individuals and families, including:

• Helpline: A confidential helpline providing information and support.
• Family Support Workers: Trained professionals who offer practical and emotional support to families.
• Publications: A range of informational materials about Huntington's disease, its symptoms, and management.
• Support Groups: Local and online support groups for individuals and families to share experiences and advice.

Awareness and Advocacy

The HDA actively works to raise awareness of Huntington's disease through campaigns, events, and collaborations with other organizations. The charity also advocates for policy changes to improve healthcare services and support for those affected by the disease.

Research Support

The Huntington's Disease Association supports research initiatives aimed at understanding the genetic and biological mechanisms of Huntington's disease. The organization collaborates with researchers and institutions to promote studies that could lead to better treatments and, ultimately, a cure.

Related pages

• Huntington's disease
• Genetic disorders
• Neurological disorders
• Charities in the United Kingdom