Les Turner ALS Foundation

Les Turner ALS Foundation is a non-profit organization dedicated to the care and support of patients suffering from Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease. The foundation is one of the leading independent ALS groups in the United States, focusing on providing personalized care, advancing research for a cure, and educating the medical community and the public about this devastating neurodegenerative disease.

History

The Les Turner ALS Foundation was established in 1977, in honor of Les Turner, a Chicago businessman who was diagnosed with ALS. The foundation was created by Turner's family and friends to raise funds for research and to provide support for those affected by ALS. Since its inception, the foundation has grown significantly, expanding its services and outreach efforts to better serve the ALS community.

Mission and Services

The mission of the Les Turner ALS Foundation is to provide the most comprehensive care and support to those living with ALS, to improve their quality of life, and to invest in research for the discovery of treatments and a cure. The foundation offers a range of services, including:

• Support Services: The foundation provides various support services, including support groups, respite grants, and equipment loans, to help patients and their families cope with the challenges of ALS.

• Patient and Family Advocacy: Advocacy efforts are aimed at raising awareness about ALS, influencing public policy, and securing resources for ALS research and patient care.

• Research: In partnership with the Les Turner ALS Center at Northwestern Medicine, the foundation funds cutting-edge research aimed at understanding the causes of ALS, developing new treatments, and ultimately finding a cure.

Les Turner ALS Center

The Les Turner ALS Center at Northwestern Medicine is a key component of the foundation's commitment to advancing ALS research. The center brings together leading researchers and clinicians to focus on innovative approaches to ALS treatment and care. It is recognized for its multidisciplinary approach, offering patients access to neurologists, respiratory therapists, physical therapists, and other specialists, all working together to manage the symptoms of ALS and improve patient outcomes.

Fundraising and Awareness Campaigns

The Les Turner ALS Foundation organizes various fundraising and awareness campaigns throughout the year to support its mission. These events include walks, runs, and other community activities designed to raise funds for ALS research and patient services, as well as to increase public awareness about the disease.

Conclusion

The Les Turner ALS Foundation plays a crucial role in the fight against ALS, offering hope and support to those affected by the disease. Through its comprehensive care services, advocacy, and research efforts, the foundation is making significant strides towards finding a cure for ALS, while improving the lives of patients and their families.

NIH genetic and rare disease info

• NIH info on Les Turner ALS Foundation

Les Turner ALS Foundation is a rare disease.