Myaware

Myaware

Myaware is a UK-based charity dedicated to supporting individuals affected by myasthenia, a group of rare neuromuscular conditions that cause muscle weakness. The organization provides information, advice, and support to those living with myasthenia and their families, as well as funding research into the condition.

History

Myaware was established in 1976 under the name "Myasthenia Gravis Association". The charity was founded to address the lack of support and information available to people with myasthenia gravis, a chronic autoimmune disorder characterized by fluctuating muscle weakness. In 2011, the organization rebranded as Myaware to reflect its broader focus on all forms of myasthenia.

Mission and Objectives

The mission of Myaware is to support people affected by myasthenia and to improve their quality of life. The charity aims to achieve this through:

• Providing information and support services to individuals and families affected by myasthenia.
• Raising awareness of myasthenia among the public and healthcare professionals.
• Funding research into the causes, treatments, and potential cures for myasthenia.

Support Services

Myaware offers a range of support services, including:

• A helpline staffed by trained advisors who provide information and support.
• Local support groups where individuals can meet others affected by myasthenia.
• Online forums and social media groups for peer support and information sharing.
• Educational materials and resources for patients and healthcare providers.

Research Funding

Myaware is committed to funding research that advances the understanding and treatment of myasthenia. The charity supports research projects that explore the underlying mechanisms of the disease, develop new treatments, and improve patient care. Myaware collaborates with academic institutions, healthcare providers, and other organizations to promote research initiatives.

Awareness Campaigns

Myaware conducts various awareness campaigns to educate the public and healthcare professionals about myasthenia. These campaigns aim to increase recognition of the symptoms of myasthenia, promote early diagnosis, and reduce stigma associated with the condition. The charity also participates in national and international awareness events, such as Myasthenia Awareness Month.

Get Involved

Individuals can support Myaware by:

• Volunteering for the charity in various capacities, such as fundraising or providing peer support.
• Participating in fundraising events and activities organized by Myaware.
• Making donations to support the charity's work.

See Also

• Myasthenia gravis
• Autoimmune disease
• Neuromuscular disease

External Links

• [Myaware Official Website](https://www.myaware.org)