National Bleeding Disorders Foundation

Non-profit organization supporting individuals with bleeding disorders

National Bleeding Disorders Foundation logo

The National Bleeding Disorders Foundation (NBDF) is a non-profit organization dedicated to supporting individuals and families affected by bleeding disorders. The foundation provides education, advocacy, and research funding to improve the quality of life for those living with conditions such as hemophilia, von Willebrand disease, and other rare bleeding disorders.

History

The National Bleeding Disorders Foundation was established in 1948 as the National Hemophilia Foundation. It was founded by a group of individuals and families affected by hemophilia who sought to improve treatment options and support for those living with the condition. Over the years, the foundation expanded its focus to include a broader range of bleeding disorders, leading to its current name.

Mission and Goals

The mission of the NBDF is to find better treatments and cures for bleeding disorders and to prevent the complications of these disorders through education, advocacy, and research. The foundation aims to:

• Provide comprehensive education and support to individuals and families affected by bleeding disorders.
• Advocate for access to quality healthcare and treatment options.
• Fund research initiatives to advance the understanding and treatment of bleeding disorders.

Programs and Services

The NBDF offers a variety of programs and services to support the bleeding disorders community:

Education

The foundation provides educational resources and programs for patients, families, and healthcare professionals. These include workshops, webinars, and informational materials on managing bleeding disorders and navigating the healthcare system.

Advocacy

The NBDF advocates for policies that improve access to care and treatment for individuals with bleeding disorders. The foundation works with lawmakers, healthcare providers, and other stakeholders to promote awareness and understanding of these conditions.

Research

The foundation funds research initiatives aimed at improving treatment options and finding cures for bleeding disorders. This includes supporting clinical trials, funding scientific studies, and collaborating with research institutions.

Community Engagement

The NBDF engages with the bleeding disorders community through events, support groups, and online forums. These platforms provide opportunities for individuals and families to connect, share experiences, and support one another.

Related pages

• Hemophilia
• Von Willebrand disease
• Bleeding disorder
• Non-profit organization