National Brain Tumor Society
Non-profit organization dedicated to brain tumor research and advocacy
The National Brain Tumor Society (NBTS) is a prominent non-profit organization in the United States dedicated to advancing the understanding, treatment, and prevention of brain tumors. The organization focuses on funding innovative research, advocating for public policy changes, and providing support to patients and families affected by brain tumors.
History[edit | edit source]
The National Brain Tumor Society was formed in 2008 through the merger of the National Brain Tumor Foundation and the Brain Tumor Society. This strategic union aimed to consolidate resources and efforts to more effectively combat brain tumors and support the community.
Mission and Goals[edit | edit source]
The mission of the National Brain Tumor Society is to discover a cure, deliver effective treatments, and advocate for patients and families affected by brain tumors. The organization strives to:
- Fund cutting-edge research to accelerate the discovery of new treatments.
- Advocate for policies that improve the lives of patients and caregivers.
- Provide comprehensive resources and support to those affected by brain tumors.
Research Initiatives[edit | edit source]
NBTS is committed to funding research that has the potential to transform the treatment landscape for brain tumors. The organization supports a variety of research initiatives, including:
- Defeat GBM Research Collaborative: A focused effort to double the five-year survival rate of glioblastoma multiforme, one of the most aggressive forms of brain cancer.
- Oligodendroglioma Research Fund: Dedicated to advancing research for oligodendroglioma, a rare type of brain tumor.
- Pediatric Research: Supporting research into pediatric brain tumors, which are the leading cause of cancer-related death in children.
Advocacy and Public Policy[edit | edit source]
NBTS actively engages in advocacy efforts to influence public policy and increase federal funding for brain tumor research. The organization works with lawmakers, government agencies, and other stakeholders to:
- Increase awareness of the challenges faced by brain tumor patients.
- Secure funding for research and treatment development.
- Ensure access to quality care and support services.
Support and Resources[edit | edit source]
The National Brain Tumor Society provides a wide range of resources and support services for patients, families, and caregivers. These include:
- Educational Materials: Comprehensive guides and information on brain tumor types, treatments, and coping strategies.
- Support Groups: Facilitating connections among patients and families for mutual support and sharing of experiences.
- Events and Fundraisers: Organizing events such as walks, runs, and other community activities to raise awareness and funds.
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Contributors: Prab R. Tumpati, MD