Uplifting Athletes

Uplifting Athletes is a nonprofit organization dedicated to leveraging the power of sports to inspire the rare disease community by generating awareness, raising funds, and bringing people together to combat rare diseases. Founded in 2007, the organization has grown to include chapters at colleges and universities across the United States, each chapter led by student-athletes who are committed to the cause.

History

The inception of Uplifting Athletes can be traced back to the personal journey of Scott Shirley, a former Penn State University football player. Shirley's father was diagnosed with a rare disease known as renal cell carcinoma, which motivated Shirley to use his platform as a collegiate athlete to raise awareness and funds for rare diseases. The initial effort, known as the "Lift For Life" event at Penn State, laid the groundwork for what would eventually become Uplifting Athletes.

Mission and Vision

The mission of Uplifting Athletes is to empower people to take action against rare diseases and to invest in scientific advancements that will lead to cures. The organization envisions a world where the rare disease community is no longer overlooked but instead embraced and supported by a wide network of allies.

Programs and Impact

Uplifting Athletes operates several key programs designed to engage the community, support patients and families, and fund research initiatives. These include:

• Lift For Life: The signature event where student-athlete chapters host strength and conditioning competitions to raise funds and awareness.
• Rare Disease Awareness Campaigns: Educational initiatives aimed at increasing public understanding of rare diseases.
• Rare Disease Research Grants: Financial support for scientific research focused on finding treatments and cures for rare diseases.

Chapters

The organization has established chapters at numerous collegiate institutions, each led by student-athletes. These chapters organize events, fundraisers, and awareness campaigns tailored to their local communities and the specific rare diseases they choose to support.

Achievements

Since its founding, Uplifting Athletes has raised millions of dollars for rare disease research and patient-focused programs. The organization has also played a crucial role in fostering a sense of solidarity and purpose among athletes, who use their platforms to advocate for the rare disease community.

Future Directions

Uplifting Athletes continues to expand its reach and impact by establishing new chapters, launching innovative programs, and partnering with other organizations in the fight against rare diseases. The organization remains committed to its mission of making a tangible difference in the lives of those affected by rare diseases.

NIH genetic and rare disease info

• NIH info on Uplifting Athletes

Uplifting Athletes is a rare disease.