ELSI

ELSI (Ethical, Legal and Social Implications) is a program that was established to address the ethical, legal and social issues that arise from genetic research. The program is part of the Human Genome Project, a global, long-term research effort to identify the estimated 20,000-25,000 genes in human DNA and to determine the sequences of the 3 billion chemical base pairs that make up human DNA.

History

The ELSI program was established in 1990 as an integral part of the Human Genome Project. The program was created to anticipate and address the ethical, legal and social implications of genetic research. The ELSI program is the largest bioethics program in the world and has been a model for other bioethics programs.

Ethical Implications

The ethical implications of genetic research include issues related to privacy and confidentiality, informed consent, and the potential for genetic discrimination. The ELSI program has funded research to explore these issues and to develop policies to protect individuals and groups from potential harms.

Legal Implications

The legal implications of genetic research include issues related to patenting of genes, ownership of genetic information, and the use of genetic information in the criminal justice system. The ELSI program has funded research to explore these issues and to develop policies to protect individuals and groups from potential harms.

Social Implications

The social implications of genetic research include issues related to the potential for stigmatization and discrimination based on genetic information, the impact of genetic information on concepts of race and ethnicity, and the potential for commercial exploitation of genetic information. The ELSI program has funded research to explore these issues and to develop policies to protect individuals and groups from potential harms.

See Also

• Human Genome Project
• Genetic Discrimination
• Bioethics
• Genetic Privacy

References

ELSI Resources
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