Emily's Entourage
Emily's Entourage is a non-profit organization dedicated to accelerating research and drug development for rare mutations of cystic fibrosis (CF), particularly those that do not respond to existing therapies. The organization was founded in 2011 by Emily Kramer-Golinkoff, who has cystic fibrosis, along with her family and friends.
History[edit | edit source]
Emily's Entourage was established to address the unmet needs of individuals with rare mutations of cystic fibrosis. The organization was inspired by Emily Kramer-Golinkoff's personal journey and the lack of treatment options available for her specific genetic mutation. Since its inception, Emily's Entourage has raised millions of dollars to fund research and has become a leading voice in the cystic fibrosis community.
Mission[edit | edit source]
The mission of Emily's Entourage is to speed up research and development of new treatments for cystic fibrosis, with a focus on rare and nonsense mutations. The organization aims to bridge the gap between scientific research and clinical application, ensuring that all individuals with cystic fibrosis have access to effective treatments.
Research Initiatives[edit | edit source]
Emily's Entourage funds cutting-edge research projects and collaborates with leading scientists, researchers, and pharmaceutical companies. The organization prioritizes projects that have the potential to lead to breakthrough therapies for rare mutations of cystic fibrosis.
Community Engagement[edit | edit source]
Emily's Entourage engages with the cystic fibrosis community through various events, fundraising campaigns, and awareness initiatives. The organization hosts annual events to raise funds and bring together supporters, patients, and researchers.
Impact[edit | edit source]
Since its founding, Emily's Entourage has significantly contributed to the advancement of research for rare cystic fibrosis mutations. The organization has helped to accelerate the development of potential therapies and has raised awareness about the challenges faced by individuals with rare mutations.
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