Autism Speaks

Autism Speaks is an American nonprofit organization dedicated to promoting solutions for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. Founded in February 2005 by Bob Wright and his wife Suzanne Wright, the organization has grown to be one of the leading autism advocacy organizations in the United States.

History

Autism Speaks was founded following the diagnosis of the Wrights' grandson with autism. The organization emerged from a merger of two existing organizations, the National Alliance for Autism Research and Cure Autism Now. Its founding was driven by the Wrights' commitment to increasing awareness of autism and raising funds for research into the causes, prevention, treatments, and a cure for autism.

Mission and Activities

The mission of Autism Speaks is to enhance the lives of those affected by autism by accelerating a spectrum of solutions for individuals and families across the autism spectrum and throughout the lifespan. The organization focuses on five key areas:

• Increasing global understanding and acceptance of people with autism
• Being a catalyst for research breakthroughs
• Increasing early childhood screening and timely interventions
• Improving the transition to adulthood
• Ensuring access to reliable information and services throughout the life span

Autism Speaks is also known for its annual World Autism Awareness Day on April 2, which it helped to establish with the United Nations in 2007. The organization's "Light It Up Blue" campaign is a global initiative to raise awareness about autism.

Controversies

Despite its prominence, Autism Speaks has faced criticism from some in the autism community. Critics have taken issue with the organization's past focus on finding a cure for autism, which some argue promotes the idea that autism needs to be "fixed." There has also been criticism regarding the allocation of funds, with a significant portion going towards research and a smaller percentage directly benefiting those with autism and their families. Additionally, the organization's representation of autistic individuals on its board and in leadership positions has been a point of contention.

Research

Autism Speaks has been instrumental in funding research into the causes, prevention, treatments, and possible cures for autism. It has supported genetic research, environmental research studies, and the development of new technologies to support individuals with autism. The organization also maintains the Autism Genetic Resource Exchange (AGRE), a DNA database that is made available to researchers studying autism.

Advocacy

The organization plays a significant role in advocacy efforts for individuals with autism and their families. It has been involved in lobbying for insurance reform to cover autism therapies and advocating for policies that support individuals with autism throughout their lives.

Conclusion

Autism Speaks continues to be a major force in the world of autism advocacy and research. While it has faced criticism, it remains committed to its mission of promoting solutions for individuals with autism and their families. Through its efforts in research, advocacy, and awareness, Autism Speaks aims to make a meaningful difference in the autism community.