National Coalition for Cancer Survivorship

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1986 Founding Meeting-300dpi

National Coalition for Cancer Survivorship (NCCS) is a prominent non-profit organization dedicated to advocating for the needs and interests of cancer survivors in the United States. Founded in 1986 by a group of cancer survivors, NCCS has played a pivotal role in changing the perception of cancer survivorship and has been at the forefront of policy advocacy, education, and support for individuals affected by cancer.

History

The National Coalition for Cancer Survivorship was established with the goal of ensuring that all people diagnosed with cancer have access to quality care, are informed participants in their healthcare decisions, and are recognized as survivors from the time of diagnosis. Since its inception, NCCS has been instrumental in advocating for survivorship care plans, promoting the rights of cancer survivors, and influencing healthcare policy to improve the quality of life for those affected by cancer.

Mission and Vision

The mission of NCCS is to advocate for quality cancer care for all people touched by cancer. The organization envisions a world where cancer survivors are valued and supported throughout their entire cancer experience, from diagnosis through treatment and beyond. NCCS focuses on policy change, survivorship education, and patient empowerment to achieve its goals.

Programs and Initiatives

NCCS undertakes various programs and initiatives aimed at supporting cancer survivors and improving cancer care. These include:

- Policy Advocacy: NCCS works with policymakers to enact legislation that improves access to care and supports the needs of cancer survivors. This includes advocating for comprehensive health care reform and policies that ensure the delivery of survivorship care planning.

- Education and Resources: The organization provides educational materials and resources to help survivors navigate the complexities of cancer care and survivorship. This includes guides on understanding cancer treatments, managing side effects, and preparing for life after cancer.

- Survivorship Research: NCCS supports research focused on improving the quality of life for cancer survivors. This research aims to address the long-term and late effects of cancer treatment, as well as the psychosocial aspects of cancer survivorship.

- Cancer Policy and Advocacy Team (CPAT): CPAT is a program designed to train cancer survivors to become effective advocates for cancer-related policies at the local, state, and national levels.

Impact

Through its advocacy and programs, NCCS has made significant contributions to the improvement of cancer care and survivorship. The organization's efforts have led to greater awareness of the needs of cancer survivors, the development of resources and support services tailored to survivors, and changes in policy that benefit the cancer community.

Challenges and Future Directions

Despite its achievements, NCCS faces ongoing challenges, including the need for continued advocacy to address disparities in cancer care, the evolving landscape of healthcare policy, and the need for increased funding for cancer research and survivorship programs. Moving forward, NCCS aims to continue its work in advocating for policies that support cancer survivors, expanding its educational initiatives, and fostering a community of empowered survivors.