Ehlers-Danlos Society
| Ehlers-Danlos Society | |
|---|---|
| [[File:|250px|alt=]] | |
| Formation | |
| Type | Non-profit organization |
| Headquarters | |
| Membership | N/A |
| Language | English |
| Leader title | |
| Leader name | |
| Website | www.ehlers-danlos.com |
The Ehlers-Danlos Society is a global community dedicated to improving the lives of individuals affected by Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). The society focuses on research, education, advocacy, and support for those living with these connective tissue disorders.
Mission[edit | edit source]
The mission of the Ehlers-Danlos Society is to advance and accelerate research and education in Ehlers-Danlos syndromes and hypermobility spectrum disorders, raising awareness and improving diagnosis and management of these conditions.
Research[edit | edit source]
The society funds and supports research initiatives aimed at understanding the genetic and molecular basis of Ehlers-Danlos syndromes. It collaborates with researchers and medical professionals worldwide to develop new diagnostic criteria and treatment options.
Education[edit | edit source]
The Ehlers-Danlos Society provides educational resources for patients, healthcare providers, and the general public. It organizes conferences, webinars, and workshops to disseminate the latest information on EDS and HSD.
Advocacy[edit | edit source]
The society advocates for the needs of individuals with Ehlers-Danlos syndromes and hypermobility spectrum disorders. It works to influence policy and improve access to healthcare and support services.
Support[edit | edit source]
The Ehlers-Danlos Society offers support to individuals and families affected by EDS and HSD through online communities, support groups, and informational resources.
See also[edit | edit source]
External links[edit | edit source]
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