ALS Association

ALS Association

The ALS Association is a non-profit organization dedicated to the fight against Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's Disease. The organization plays a crucial role in providing care services to assist people with ALS and their families through a nationwide network of chapters, coordinating global research towards treatments and a cure, and advocating for policies that improve the lives of people with ALS.

History

The ALS Association was established in 1985 as a national organization to combat ALS and improve the lives of those affected by the disease. Since its inception, the association has been at the forefront of ALS research, patient care, and advocacy, dedicating millions of dollars to scientific studies and supporting individuals and families navigating the challenges of the disease.

Mission and Vision

The mission of the ALS Association is to discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest. Its vision is to create a world without ALS, where the disease no longer poses a threat to individuals and families.

Research

The ALS Association is committed to advancing research in the field of ALS. It supports a comprehensive research program that includes funding for global research collaborations, grants for new and innovative science, and resources for early-stage drug discovery. The organization's research efforts are focused on understanding the causes of ALS, developing effective treatments, and ultimately finding a cure for the disease.

Care Services

Through its nationwide network of chapters, the ALS Association provides a range of care services to support people living with ALS and their families. These services include multidisciplinary care through ALS clinics, assistance with equipment and communication devices, home and community-based services, and support groups. The organization also offers educational resources to help those affected by ALS better understand and manage the disease.

Advocacy

The ALS Association is a leading voice in advocating for policies that benefit people with ALS. This includes efforts to increase federal funding for ALS research, improve access to care and services, and ensure the rights of people with ALS are protected. The organization works closely with policymakers, the medical community, and other stakeholders to advance its advocacy goals.

Fundraising and Awareness

The ALS Association is perhaps best known for the Ice Bucket Challenge, a viral social media campaign that raised significant funds and awareness for ALS in 2014. The challenge involved dumping a bucket of ice water over one's head and nominating others to do the same, in order to promote awareness of the disease and encourage donations to ALS research. The campaign was a global phenomenon, significantly boosting the profile of ALS and the work of the ALS Association.

Conclusion

The ALS Association remains a beacon of hope for those affected by Amyotrophic Lateral Sclerosis. Through its comprehensive approach to research, care services, and advocacy, the organization continues to make strides towards a world without ALS. Its efforts not only improve the quality of life for those living with the disease but also bring us closer to the ultimate goal of finding a cure.

NIH genetic and rare disease info

• NIH info on ALS Association

ALS Association is a rare disease.