Patient registry

Patient Registry

A Patient Registry is a systematic collection of data about patients that is used to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure. It serves a pre-defined scientific, clinical, or policy purpose and is an important tool in biomedical research and health policy.

Purpose

The primary purpose of a patient registry is to document the clinical course and outcomes of a disease or condition. This can be used to monitor the effectiveness of treatments, identify patterns in disease progression, and contribute to the development of new treatments and interventions.

Types of Patient Registries

There are several types of patient registries, each serving a different purpose. These include:

• Disease Registries: These registries focus on patients diagnosed with a specific disease or condition. They are often used in epidemiology to study the prevalence and incidence of diseases.

• Product Registries: These registries track the use of a specific product or treatment in a population. They are often used to monitor the safety and effectiveness of new treatments or interventions.

• Health Services Registries: These registries collect data on the provision and outcomes of healthcare services. They are often used to evaluate the quality and efficiency of healthcare delivery.

Data Collection

Data in a patient registry is typically collected through a variety of sources, including medical records, patient interviews, and laboratory results. The data collected can include demographic information, medical history, treatment information, and outcomes data.

Benefits and Challenges

Patient registries offer several benefits, including the ability to track the natural history of a disease, monitor the safety and effectiveness of treatments, and provide data for healthcare policy and planning. However, they also present several challenges, such as ensuring data quality and protecting patient privacy.

See Also

• Clinical Trials
• Epidemiology
• Healthcare Policy
• Medical Records

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